The more you know about Friedreich’s ataxia (FA), the better you’ll be able to manage it
After being diagnosed with FA, you probably have lots of questions. You may even feel overwhelmed as you learn about the condition. Be sure to talk with your doctor about any questions you may have.
It’s important to remember that you won’t learn everything about FA overnight. But this is a good place to start and you’ll learn more over time. The more you understand, the better you’ll be able to manage your condition and be an active member of your care team.
Putting together a strong multidisciplinary care team is an important part of managing FA
Because FA is such a rare disease, it may be hard to find people who understand what you are going through. People who can support you include:
Various healthcare professionals. Each member of your care team focuses on different FA symptoms. Download the Care Circle Flashcard to learn more about each member of your care team.
Your family and friends. Surrounding yourself with a support system is critical throughout your FA journey. If you’re not sure how to talk to your friends about FA, download the Let’s Talk FA Brochure for tips.
Other FA warriors like you. Sharing your experiences with other FA warriors can help you find the support you need. Visit the FARA website for a list of support groups. You can also join the Friedreich’s Ataxia Parents’ Group, an online group where people with FA and their caregivers share information and support about FA. You can also find several FA support groups and news pages on Facebook.
Healthy eating and physical activity are important, too
By maintaining a balanced diet and being as active as you can be, you’re taking big steps in managing your FA:
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